ESPEYB15 6 Gender Dysphoria and Disorders of Sex Development Important for clinical practice (2 abstracts)
6.4 The Amsterdam Cohort of Gender Dysphoria Study (1972-2015): Trends in Prevalence, Treatment, and Regrets
Wiepjes CM , Nota NM , de Blok CJM , Klaver M , de Vries ALC , Wensing-Kruger SA , de Jongh RT , Bouman MB , Steensma TD , Cohen-Kettenis P , Gooren LJG , Kreukels BPC & den Heijer M
Department of Endocrinology, VU University Medical Center, Amsterdam, the Netherlands; Center of Expertise on Gender Dysphoria, VU University Medical Center, Amsterdam, the Netherlands, and others
To read the full abstract: J Sex Med. 2018 15(4)
This is an important paper with a follow-up covering more than 11,000 GD patients from a single clinic in the Netherlands, looking after most (>95%) of the GD patients of the country. Long-term follow-up to adulthood of children and adolescents with GD is still lacking as the recent rapid increase of these groups has not yet resulted in substantial numbers of adults to study. In particular, very little data is available on later regrets in children and adolescents with GD after hormone therapy and surgery resulting in irreversible effects on the body. Further, and not uncommon in pediatrics, organizational problems of the health care may have created difficulties to follow-up post transition pediatric GD patients into adult care. Although most GD patients in this study were adults an important part was adolescents. The data presented is re-assuring as the regrets were few. This is supported by other studies (in adults) also showing that regrets are sparse and trends to fewer regrets in more recent years. These observations have been interpreted as effects of a higher quality of the current work-up and diagnostic efforts for GD patients compared to previously.
Volume 15
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ESPE Yearbook of Paediatric Endocrinology
ISSN 1662-4009 (Online)
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