ESPEYB15 9 Oncology and chronic disease Late effects of tumour therapy: good and bad news on prevention strategies (2 abstracts)
9.6 Development of the functional social network index for adolescent and young adult cancer survivors
Huang IC , Jones CM , Brinkman TM , Hudson MM , Srivastava DK , Li Y , Robison LL & Krull KR
Department of Epidemiology and Cancer Control, St. Jude Children’s Research Hospital, Memphis, TN, USA
To read the full abstract: Cancer. 2018;124:2220-2227
The Brief Coping Orientation to Problem Experience (brief COPE) questionnaire was designed to explore the coping strategies used by individuals in response to stress. It has been used to research various populations with chronic health conditions (1). ‘Betweenness centrality’ is a measure of centrality in a graph based on shortest paths. In a communications network, a node with higher betweenness centrality would have more control over the network, because more information will pass through that node (2). This study compared those instruments with a new index, FSNI to analyse social network in AYA CSs. It is well known that these patients need careful physical and psychological support to maintain a satisfactory quality of life. Accurate identification of “at risk subjects” is necessary to improve social relationships, in particular for those patients (e.g. lymphoma and chemotherapy treated) who showed a higher FSNI. As underlined by the authors, it would be interesting to evaluate relationship characteristics, in particular in terms of age of friends/relatives, to better identify the degree of dependence on them. It would also be interesting to extend the analysis to CSs with onset of cancer in early childhood, for whom the risk of persistent dependence on parents and relatives is high and could interfere with the process of achieving independence during adolescence.
1. Carver CS. You want to measure coping but your protocol’s too long: consider the brief COPE. Int J Behav Med. 1997; 4: 92-100.
2. Knoke D, Yang S. Social Network Analysis. 2nd ed. Los Angeles: Sage Publications; 2008.
Volume 15
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ESPE Yearbook of Paediatric Endocrinology
ISSN 1662-4009 (Online)
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