ISSN 1662-4009 (online)

Previous issue | Volume 18 | ESPEYB18 | Next issue

Yearbook of Paediatric Endocrinology 2021

ey0018.6-7 | Patient Related Outcomes | ESPEYB18

6.7. Young voices: sexual health and transition care needs in adolescents with intersex/differences of sex development-A pilot study

N Callens , BPC Kreukels , TC van de Grift

J Pediatr Adolesc Gynecol. 2021 Apr;34(2):176–189.e2. doi: 10.1016/j.jpag.2020.11.001 study explores the well-being and sexual health needs of contemporary youth with a DSD. It is a small scale, mixed methods study by specialized DSD psychologists-sexologists in a sample of w...

ey0018.6-8 | Patient Related Outcomes | ESPEYB18

6.8. Do parents really know best? Informed consent to sex assigning and 'normalising' treatment of minors with variations of sex characteristics

P Cannoot

Cult Health Sex. 2021 Apr;23(4):564–578. doi: 10.1080/13691058.2020.1785012.. paper, by a human rights researcher, explores how European law systems, by their conceptualisation of sex as a binary construct, may favour medical interventions in children with variations in se...

ey0018.6-9 | Patient Related Outcomes | ESPEYB18

6.9. Early Genital Surgery in Disorders/Differences of Sex Development: Patients' Perspectives

E Bennecke , S Bernstein , P Lee , TC van de Grift , A Nordenskjold , M Rapp , M Simmonds , JC Streuli , U Thyen , C Wiesemann

Arch Sex Behav. 2021 Apr;50(3):913–923. doi: 10.1007/s10508-021-01953-6. PMID: 33712989This paper describes a patient cohort study of 459 individuals with various DSD diagnoses, as part of the dsd-LIFE study. Patients were included at 14 different sites in 6 European countries.Genital surgery has been increasingly questioned in the past decade. Both the timin...

ey0018.6-10 | Patient Related Outcomes | ESPEYB18

6.10. Participant- and Clinician-Reported Long-Term Outcomes After Surgery in Individuals with Complete Androgen Insensitivity Syndrome

Duranteau Lise , Rapp Marion , van de Grift Tim C , Hirschberg Angelica L

J Pediatr Adolesc Gynecol. 2021 Apr;34(2):168–175. doi:10.1016/j.jpag.2020.11.012. PMID: 33248216The authors report the long-term outcomes of 71 patients with Complete Androgen Insensitivity Syndrome (CAIS) in the multicentre cross-sectional dsd-LIFE study. Patients were included at 14 different sites in 6 countries in Europe. This is one of the largest long-term studies on CAIS and is of interest to clinicians who manage girls and women wi...